My sister in Hamburg, Germany, who is a nurse, sent me a link to a Wikipedia article that seems to describe the technical details of Gracie Lou's condition to a "T." It's called
infant respiratory distress syndrome or IRDS. As a result of reading that article, I got the idea of looking for something about "infant emphysema" to see if I could find the official name that the nurse used yesterday. I believe I found it
here. It's called
pulmonary interstitial emphysema, or
PIE.
Not sure it helps me a whole lot
. . . other than to confirm that the hospital staff has communicated to us very well and they are and have been doing everything possible to give Gracie Lou every opportunity to live.
We are so grateful to them for their amazing service.