Thursday, December 15, 2011

Healthcare freedom?

What would you do if "they" came knocking on your door early in the morning because, "they" say, you are guilty of child neglect because you (and your son) refuse to put him through more cancer treatments of "their" preference after your son is found cancer-free?

Indeed, what would you do if this all happened because you disagreed with the doctor who had been treating your son when he demanded that you put your son under this kind of care:
treatments of Ifosfamide, Etoposide, Doxorubicin, Vincristine and Anorexialt. NONE of which have been FDA approved for use in children or even for the use of [your son's] diagnosed condition. [And some of which] have . . . been shown to cause other forms of cancers.

Some other side effects of these drugs are:
-Damage to the cranial motor nerves
-Serious infections
-Failure of boys to sexually mature
-The inability to father children

Yep. Real story. Real parents. Real 9- (now 10-) year-old boy. Real lawsuit. And real pain.

Jacob Stieler was diagnosed with cancer back in March of this year. After undergoing surgery and chemo treatments, he and his parents were dumfounded and thrilled to discover there were no signs of cancer in July. All his scans came back clear. His blood counts were good. . . .

July 1:
Thursday we have to head back to Grand Rapids for Jacob to get his counts checked and Friday, we have to go back to Grand Rapids again for Jacob’s MRI and Bone Scan. Very busy week! And lots of driving. Not my favorite thing to do, but it will be nice to get the tests done and see where Jacob’s at.

Please be praying for Jacob’s tests next week. Pray that his counts will be higher on Sunday so he won’t have to have another transfusion.
July 6:
Jacob had his counts checked Sunday morning. They were great! Praise God! That meant that he didn’t have to have his Neupogen shots for the rest of the week. He was so happy about that. He did really good all day, but around dinner time, he had a melt-down. I don’t know what happened, but he was not happy. He told me he wished he could fall asleep and never wake up. Boy, that is so hard to hear! I know he’s had those moments a few times already, and I can’t blame him, but it breaks my heart. I think he was just drained from a day at the beach. I’m always wiped out myself the day after too. Anyway, he woke up Monday morning and had done a 180. He was back to his old silly self.
July 7:
And then July 11:
We’ll be leaving out of state for treatment for a month or so. It’ll be so nice to be back after that. Just that much sweeter! Please continue to pray for Jacob. Even though his test came back clear, I know that doesn’t mean he’s in the clear. This will mean a lifestyle change and we’re all willing to do it, especially if that means everyone is healthy in our home. :) We’re so thankful for all of your prayers. I know that helped tremendously!!!! :)

Did you catch that?

"We’ll be leaving out of state for treatment for a month or so"? What's that all about? Oh. Not to mention her constant reference to prayers and God.

Obviously a weirdo. How dare she think she knows more than the doctors who are committed to cutting, burning and poisoning? Lifestyle changes? Is she crazy?

SO . . .

July 18:
Well, this has been the craziest week!

Wednesday [that would be July 13--JAH], I got a phone call from the social worker at the hospital where Jacob has been.

She informed me since we are refusing radiation for Jacob, they would be filing a petition for court. I was in shock! Well, not totally. In shock for the fact that my son [is] CANCER-FREE!!!

Anyway, Friday morning comes and I am woke up by the sound of Child Protective Services knocking on our door.

I was disgusted to find out that the hospital lied and said that he would have a 0% chance of survival if he didn’t follow through with it (that number was NEVER given to me). Second, they with-held the fact that his PET Scan came back clear and he is, in fact, cancer-free. I am disgusted by the fact that they were deceitful.

What happened to parent’s rights? We are not being foolish [in] not taking further action with Jacob. We are taking him to a place to build up his immune system, get some healthy weight back on his bones and he will have multiple therapies to heal his worn body.

The fact that they want to give him almost 2 months of radiation plus 6 months more of chemo – both of which cause cancer – when no cancer is present, is completely shocking!

Please be praying for all of us! Jacob is scared and worried! He already told me that if they make him do chemo and radiation, that he will kill himself!
So, suddenly, the Stielers are no longer looking at a "mere" medical problem; now they must deal with legal problems as well? Because they have come to the conclusion that there may be better means of dealing with cancer (like "lifestyle changes") than the treatments that the allopaths prefer?

On October 14, Mrs. Stieler wrote,
Yesterday we went to court again. . . . There is now an actual trial set for the first week of December. There will be a jury. This trial is for two things.

First, they are still pushing to have Jacob have 6 more months of chemotherapy and 2 months of radiation. Two of the chemotherapy drugs that he was on and would be on are mustard gas – yes, chemical warfare.

Another one is nicknamed “red death” and can potentially cause major heart damage.

Another has chloroform in it and the other two are just as capable of causing cancer.

Yes, it’s all POISON! And I’m sure most of you know how horrible radiation is.

Oh, and did I forget to mention again that Jacob is CANCER-FREE!!!! Yes, he had another PET Scan a few weeks ago and still NO CANCER! They truly believe that poisoning my child is the best thing for his health.

It doesn’t matter that we have doctors currently keeping an eye on him.

It doesn’t matter that he’s had a lifestyle change and we’re doing multiple things to keep him healthy.

It doesn’t matter that we’re going to keep getting PET Scans done every 3 months.

It doesn’t matter that we would certainly get him into treatment the moment one of those scans came up showing cancer. They’re not happy with that answer.
And in the very next sentence she begins speculating about why her [former?] doctors and/or the hospital . . . and definitely the state are coming after them: "Is it because they’re not getting their $60,000 a month? And that’s not counting radiation."
And then . . .
Another reason for this whole trial is the fact that they’re trying to set an example with us – to not question the doctors or the state, for that matter. We’re all just basically “foster-parents” to our children. The state actually owns them and they have a right to decide what’s best for our kids. We, as parents, do not! I hope you are all as outraged at this as we are!!!

What happened to our rights?? . . . Doesn’t the 14th amendment mean anything?? . . . We need to stand up for our rights as parents . . . that we should ultimately have the right to decide what’s best. Not some strangers who don’t know a thing about our children or us for that matter.
And so, I wondered, what has happened? We're well past the first week of December. . . .


November 29:
Our trial date has been changed to January 10-13, 2012. It’s a long story and frankly quite ridiculous, but I probably shouldn’t get into that here. Let’s just say, the other side asked for it. [Not sure what the "it" is to which she is referring--the original trial? The postponement? Perhaps both. --JAH] I know that there is good and bad that comes with it, but we really just wanted to be done with it for Christmas. Not to mention that people, including my husband, took time off of work to be there or to testify. It’s really quite maddening!
And Mrs. Stieler's latest update (12/10/11):
I never got back to you all after the motions hearing on November 30th. I guess I didn’t take the time because there was nothing to report. They were supposed to go over some of the motions that were filed, but the “other side” wasn’t prepared.

It's getting quite ridiculous! They’ve been investigating us since July. Filed the petition in September and THEY’RE not ready?

Oh, and I forgot to mention that one of the reasons that the trial was asked to be moved to January is because “it’s not fair” that it was 2 against 1. As in Ken and I having 2 lawyers to their one.

Someone has initiated a petition drive to ask the governor of Michigan to drop the lawsuit against the Stielers. You can find that here.

. . . And I am left wondering once more about how "free" we are, yet, here in the "land of the free." . . .
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